{"id":26500,"date":"2021-11-02T00:00:00","date_gmt":"2021-11-02T00:00:00","guid":{"rendered":"https:\/\/blog.saatva.com\/what-is-narcolepsy\/"},"modified":"2023-08-28T22:42:09","modified_gmt":"2023-08-28T22:42:09","slug":"what-is-narcolepsy","status":"publish","type":"post","link":"https:\/\/www.saatva.com\/blog\/what-is-narcolepsy\/","title":{"rendered":"Do You Have Narcolepsy and Not Even Know It?"},"content":{"rendered":"\n<p>Narcolepsy has often found its way into pop culture since it\u2019s a condition that can make characters suddenly fall asleep at a moment\u2019s notice.&nbsp;<\/p>\n\n\n\n<p>Films like&nbsp;<em>Moulin Rouge!<\/em>&nbsp;and&nbsp;<em>Isle of Dogs<\/em>&nbsp;feature characters with narcolepsy, which can make an audience chuckle. Even though filmmakers may poke fun at this disorder, narcolepsy really isn\u2019t a laughing matter. In fact, it\u2019s estimated that up to 200,000 Americans have narcolepsy\u2014but only a quarter of them have been properly diagnosed.<\/p>\n\n\n\n<p>That means it\u2019s possible to have narcolepsy and not even know it.&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/valleysleepcenter.com\/lauri-leadley-my-story\/\">Lauri Leadley<\/a>, clinical sleep educator and president of Valley Sleep Center in&nbsp;Glendale, Arizona, says the symptoms of narcolepsy don\u2019t always present in a way that prompts people to seek medical treatment.<\/p>\n\n\n\n<p>\u201cThe symptoms aren\u2019t always severe,\u201d she says. \u201c[Narcolepsy] won\u2019t be diagnosed or treated until 10 to 15 years after the onset of symptoms.\u201d<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>It\u2019s estimated that up to 200,000 Americans have narcolepsy\u2014but only a quarter of them have been properly diagnosed.<\/p>\n<\/blockquote>\n\n\n\n<p><a target=\"_blank\" rel=\"noreferrer noopener\" href=\"http:\/\/www.cvilleneuroandsleep.com\/\">Chris Winter<\/a>, MD, neurologist, sleep specialist, and author of&nbsp;<em><a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.amazon.com\/Rested-Child-Tired-Irritable-Disorder-ebook\/dp\/B08T1D751C\">The Rested Child<\/a><\/em>, shares a similar sentiment, saying, \u201cWe as doctors struggle to recognize sleepiness as a disorder. Patients have a tendency to ignore it or explain it away.\u201d<\/p>\n\n\n\n<p>Since it\u2019s a difficult condition for individuals\u2014and even doctors\u2014to pinpoint, read on for helpful information that may lead you to a narcolepsy diagnosis.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-what-is-narcolepsy\">What is narcolepsy?<\/h2>\n\n\n\n<p>Winter defines narcolepsy as \u201ca disorder of sleep regulation causing the affected individual to feel excessive sleepiness at a near-constant level.\u201d&nbsp;<\/p>\n\n\n\n<p>He explains that it\u2019s caused by a deficiency of a sleep-regulating chemical called orexin. Leadley adds that it\u2019s a rare neurological disorder that impacts the regulation of the sleep-wake cycle.<\/p>\n\n\n\n<p>\u201cIn short, it affects the brain\u2019s ability to control the timing of sleep,\u201d she says.<\/p>\n\n\n\n<p>The main triggers that can bring on narcolepsy include&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/sleep-and-autoimmune-disease\/\">autoimmune disease<\/a>, a chemical imbalance, brain injury, and certain infections, according to Leadley.<\/p>\n\n\n\n<p>\u201cNarcolepsy is typically present in people between the ages of 10 to 40 but can occur at any age,\u201d she says. \u201cSymptoms become more severe as a person ages.\u201d<\/p>\n\n\n\n<p>Narcolepsy can have genetic ties as well. The National Institute of Neurological Disorders and Stroke reports that&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.ninds.nih.gov\/Disorders\/Patient-Caregiver-Education\/Fact-Sheets\/Narcolepsy-Fact-Sheet\">10% of people diagnosed with narcolepsy<\/a>&nbsp;also have a relative with the condition.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-what-are-the-most-common-narcolepsy-symptoms\">What are the most common narcolepsy symptoms?<\/h2>\n\n\n\n<p>The top symptom of narcolepsy is \u201cmainly a relentless drive to sleep,\u201d as Winter puts it.<\/p>\n\n\n\n<p>Alex Savy, certified sleep science coach and founder and CEO of&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.sleepingocean.com\/\">Sleeping Ocean<\/a>, says narcolepsy symptoms typically appear during the adolescent years.<\/p>\n\n\n\n<p>Narcolepsy symptoms can include:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong><a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/what-is-sleep-paralysis\/\">Sleep paralysis<\/a>:&nbsp;<\/strong>This is the temporary inability to move or speak during the sleep-wake or wake-sleep transition. Leadley says this can last seconds or minutes.<\/li>\n\n\n\n<li><strong>Hypnogogic hallucinations:&nbsp;<\/strong>These hallucinations can take place as you fall asleep or wake up. They often manifest as&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/what-causes-vivid-dreams\/\">unusual and frightening dreams<\/a>&nbsp;that can take place in your current environment.<\/li>\n\n\n\n<li><strong><a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/excessive-daytime-sleepiness\/\">Excessive daytime sleepiness<\/a>&nbsp;(EDS):&nbsp;<\/strong>\u201cEDS is the first symptom many people with narcolepsy will experience,\u201d Leadley says. \u201cEDS is responsible for the sleep attacks associated with this condition and causes people to involuntarily fall asleep at inappropriate times.\u201d<\/li>\n\n\n\n<li><strong>Cataplexy:<\/strong>&nbsp;This is a sudden and unexplained loss of muscle tone typically triggered as a strong emotional response. \u201cAlthough they are conscious throughout the attack, they generally cannot speak and may lose the use of their arms and\/or legs,\u201d Leadley notes.<\/li>\n\n\n\n<li><strong>Insomnia<\/strong>&nbsp;or&nbsp;<strong>fragmented sleep:&nbsp;<\/strong>People with narcolepsy often also&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.mayoclinic.org\/diseases-conditions\/narcolepsy\/symptoms-causes\/syc-20375497\">have another sleep disorder<\/a>, like&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/tips-for-treating-insomnia\/\">insomnia<\/a>, reports Mayo Clinic.&nbsp;<\/li>\n<\/ul>\n\n\n\n<p>Needless to say, these symptoms can make day-to-day functioning quite difficult for those with narcolepsy. Specifically, Leadley says these sudden sleep attacks can make working or driving very dangerous.<\/p>\n\n\n\n<p>\u201cNarcoleptics are likely to experience 10 times more traffic accidents than those who don\u2019t have narcolepsy,\u201d she says.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-how-is-narcolepsy-diagnosed\">How is narcolepsy diagnosed?<\/h2>\n\n\n\n<p>Like any other disorder, a diagnosis of narcolepsy typically starts with your health history, a physical exam, and bloodwork.&nbsp;<\/p>\n\n\n\n<p>Winter says that often, a doctor will recommend a sleep study and nap study (also known as a sleep latency test) to further confirm symptoms. Leadley says the sleep center should be accredited by the American Academy of Sleep Medicine, which you can search for on&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/aasm.org\/\">their website<\/a>.<\/p>\n\n\n\n<p>If you suspect narcolepsy, Savy says you can ask your primary care physician for sleep medicine specialist recommendations to find the right doctor.<\/p>\n\n\n\n<p>\u201cA primary care physician might not have a deep enough understanding of this disorder, so it\u2019s better to seek a professional with a thorough understanding of the issue, someone whose specialty is narrowed down to sleep problems,\u201d he says.<\/p>\n\n\n\n<p>Since narcolepsy is a neurologic condition, you might also meet with a neurologist to get a proper diagnosis, Savy adds.&nbsp;<\/p>\n\n\n\n<p>It can be possible to misdiagnose narcolepsy as something else. It\u2019s frequently mistaken for depression and&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/sleeping-with-anxiety\/\">anxiety<\/a>&nbsp;since these disorders can share similar symptoms.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-what-s-the-best-narcolepsy-treatment\">What&#8217;s the best narcolepsy treatment?<\/h2>\n\n\n\n<p>While there&#8217;s currently no cure for narcolepsy, luckily, there are quite a few treatment options. &nbsp;<\/p>\n\n\n\n<p>Winter says there are up to nine FDA-approved medications that \u201ccan be remarkably helpful to patients with the disorder.&#8221; These medications are usually nervous system stimulants.<\/p>\n\n\n\n<p>Leadley recommends a combination of medication and behavioral therapy to address narcolepsy, along with&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/how-long-should-i-nap\/\">scheduled naps<\/a>&nbsp;and maintaining a regular sleep, exercise, and meal schedule, things that will help keep the condition under control.<\/p>\n\n\n\n<p>\u201cPractice healthy habits,&#8221; she emphasizes. &#8220;Keep a balanced diet and stick to a set sleep schedule, naps included. Make sure to make plans far enough in advance so you can keep to your schedule.\u201d<\/p>\n\n\n\n<p>Keep in mind that narcolepsy treatments depend on each specific case, says Savy. Only a professional can find the most suitable solution for each patient based on the severity of the disorder, the number of symptoms, and particular lifestyles.<\/p>\n\n\n\n<p>\u201cTo manage daily life while dealing with narcolepsy, patients need to follow their medical regimen and doctor\u2019s recommendations,\u201d Savy shares. \u201cFinding support online or in local communities can be beneficial too, as it\u2019s easier to deal with something challenging when you can share it with others.&#8221;<\/p>\n\n\n\n<p>You might also want to educate your family and friends on the issue to avoid misunderstanding or confusion when one of the symptoms occurs, suggests Savy.&nbsp;<\/p>\n\n\n\n<p>Taking care of your safety is of the utmost importance as well. For example, you might want to avoid driving or operating machinery if the medication takes its time to start working, says Savy.&nbsp;<\/p>\n\n\n\n<p><em>From narcolepsy to restless legs syndrome, here are the&nbsp;<a target=\"_blank\" rel=\"noreferrer noopener\" href=\"https:\/\/www.saatva.com\/blog\/sleep-disorders\/\">most common sleep disorders<\/a>&nbsp;and how to treat them.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Narcolepsy affects up to 200,000 Americans, but many people don&#8217;t know they have it. Learn about common narcolepsy symptoms and how to treat this condition.<\/p>\n","protected":false},"author":70,"featured_media":26501,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[398,389],"tags":[],"coauthors":[418],"guest":[],"host":[],"class_list":["post-26500","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sleep-disorders-conditions","category-sleep-health"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/posts\/26500","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/users\/70"}],"replies":[{"embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/comments?post=26500"}],"version-history":[{"count":0,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/posts\/26500\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/media\/26501"}],"wp:attachment":[{"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/media?parent=26500"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/categories?post=26500"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/tags?post=26500"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/coauthors?post=26500"},{"taxonomy":"guest","embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/guest?post=26500"},{"taxonomy":"host","embeddable":true,"href":"https:\/\/www.saatva.com\/blog\/wp-json\/wp\/v2\/host?post=26500"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}